For or against: Should we think about creating a European health data space?

NO / “” It is essential to succeed in the “resistance revolution”

Jean-Charles Samuelian-Warve, co-founder and managing director of Alan

The health crisis highlighted the importance of reliable, accessible, homogeneous health data: acute epidemic management (how many patients have been screened or hospitalized?), Vaccine development and administration, up to secondary monitoring of possible effects … Medical data was conclusive. In this context, the European Commission published its draft legal framework for a European Health Data Area (EHDS). We must tread this path firmly, subject to strong guarantees of security, compliance and privacy.

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Creating EHDS will make progress for citizens who will become their data masters and for patients: the planned space is an essential platform to enable data sharing between care providers (reducing prescription duplicates, simplifying administration) and improving the quality of care through access to information. It is also a crucial opportunity for research: the implemented framework will allow a large group of patients to study the “real life” to monitor the effects of treatment, to identify side effects … Can’t achieve without quality data: This will allow us to create services in Europe to limit the outbreak of risk factors and chronic diseases (obesity, diabetes, cardiovascular disease).

Progress for Europe in the end. At a time when new epidemics are looming, citizens want to have concrete equipment to restore control over their health. By establishing a European space for health data, the EU has the potential to establish itself as a model for democratic management of public health, compared to competing spaces (United States, China, in the first place), all economic issues involved.

Yes / “Transmission and use of this sensitive data needs to be controlled”

Bernard Benhamu, Secretary General of the Institute for Digital Sovereignty

The European Health Data Space is a strategic project that will allow researchers to access data from various players involved in developing artificial intelligence systems for diagnosis and treatment. It should also make it possible to accelerate the transition from the health economy to prevention. But it must ensure that these transformations do not jeopardize our social security, in favor of hyper-personalization of health coverage or hyper-control of individuals. Above all, the transmission and use of this sensitive data needs to be monitored.

Health information is already a major goal for the technology group. Companies like Apple, Google, Microsoft and even Facebook are investing heavily in their treatment. The attack on Microsoft Exchange Server is a recent example of competition in this area. Cybersecurity experts at first thought it was industrial espionage. However, for the Chinese invaders – as it was about them – the goal was to retrieve the structural documents of millions of companies, to train their own artificial intelligence systems, so that they could overtake their American or European competitors. Beyond cyber attacks, EHDS must protect this sensitive information from foreign intelligence agencies, which are able to obtain it through top-secret requests authorized by FISA law. (Foreign Intelligence Surveillance Act). This question is from the French Health Data Platform (or) Health data hub) Is currently hosted Microsoft Azure.

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Data protection but also the ethical conditions under which they will be used will form the cornerstone of EHDS.


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